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      • Vol 1 Issue (1) October 2025
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    • EDITORIAL BOARD
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      • Current issue
        • Vol 1 Issue (1) October 2025
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Home / Latest Issue / Vol.1, Issue (1) October 2025 / PJOCECP 01-006

Challenges of Caregiving in Palliative and End-of-life Care: A Systematic Review with Counselling Consideration

Aina Mardhiah Ikhwan, Siti Aishah Hassan and Yusni Mohamad Yusop


Pertanika Journal of Counsellor Education and Counselling Psychology, Volume 1, Issue 1, October 2025

DOI: http://doi.org/10.47836/pjocecp.1.1.06 


Keywords: Family caregivers, caregiver burden, palliative care, end-of-life care, counselling interventions, coping, resilience, systematic review

Published on: 2025-10-29

eISSN 3093-8473

Article ID

PJOCECP 01-006

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Abstract

Family caregivers are vital to palliative and end-of-life care, yet their experiences of strain remain underrecognized and insufficiently supported. This review synthesized evidence from 12 studies published between 2020 and 2025 to examine caregiver challenges. A narrative synthesis approach was employed due to heterogeneity across study designs and outcomes. Findings showed caregiver burden is multidimensional, spanning five domains. Psychological and emotional strain included stress, anxiety, depression, grief, guilt, and hopelessness. Physical, practical, and economic strain encompassed fatigue, disrupted routines, role overload, and financial hardship. Informational and training needs reflected inadequate knowledge, skill gaps, and fragmented services. Relational and social strain involved dyadic conflict, family disputes, social withdrawal, and stigma. Socio-cultural and contextual strain arose from cultural duty, religious obligation, and systemic inequities. Counseling interventions were central to addressing these burdens, including cognitive–behavioural and meaning-centred therapies, psychoeducation, family counselling, and culturally sensitive approaches. The review emphasizes that counselling must move beyond symptom relief, positioning counsellors as educators, advocates, and community connectors.

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Pertanika Journal of Counsellor Education & Counselling Psychology

Department of Counsellor Education & Counselling Psychology 

Faculty of Educational Studies

Universiti Putra Malaysia

43400, Serdang, Selangor

Malaysia

Tel: +603-97698118

Email: pjocecp@upm.edu.my 

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